Advocate


Advocate: {verb} – to publicly support


We believe in a future where a diagnosis of Down syndrome does not drive a mother to her knees, but instead is a celebratory moment, much like any other baby being born.  We believe in a future where the number of children with Down syndrome grows instead of decreases. We believe in a future where the estimated termination rate of 90% is a horrific statistic of the past.

Our mission involves an outreach to medical professionals who deliver a diagnosis of Trisomy 21. We focus on teaching new and compassionate methods for delivering a diagnosis of Down syndrome and we provide them with the resources they need for their staff and their patients. We do this so that families will have information that’s factual and current, not focused on aged perceptions and stereotypes.  We do this because we want the first moments our children with Down syndrome spend in the world to be spent with warmth, acceptance, and support.  We do this so that mothers and fathers can enjoy their pregnancies with the excitement of meeting their new babies.  We do this so that the professionals delivering the diagnosis can see how truly blessed and grateful we feel to have our children in our lives.

We believe in a future where we don’t have to advocate for our children to show the world how smart, talented, and able they are because the world will already see it.  We believe in a future in which our children will attend school and be welcomed to the classroom with excitement, where they will learn alongside their typically developing peers.  We believe in a future where parents will not have to advocate but instead, enjoy and trust in the educational journey.

Our mission also involves providing professional development and learning opportunities to the educators who will work closely with our children. We do this because research shows children with disabilities learn more alongside their typically developing peers then in segregated environments. Furthermore, research also shows that typically developing peers learn more when they are not kept from their peers who have disabilities.  We do this because even though the law states it is their right, only 17% of students with disabilities are included in a typical classroom.

On this journey, we have met medical professionals who desperately seek to see change and humble themselves to learn what is best for their patients.  We have met educators and administrators who stand strong in support of our vision and encourage us to do more.

We have come to realize that all we dream can be reality.  But until that time, we advocate.


Resources

The Center for Parent Information and Resources – The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.

iAdvocate (Mobile App) – An advocacy tool for parents, families, and advocates.  The goal of iAdvocate is to share and develop specific strategies with parents for working collaboratively with a school team to improve their children’s education.

IDEA – A website dedicated to the the Individuals with Disabilities Education Act (IDEA).  IDEA is a law ensuring services to children with disabilities throughout the nation.

Wrightslaw – Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.